Patients + Research: Joan Baillie

Meet Joan

Three years ago, Joan Baillie was diagnosed with Mild Cognitive Impairment (a condition that is likely to develop into dementia). She participated in a brain rehabilitation research study at Baycrest Health Sciences led by Rotman Research Institute senior scientist, Dr. Brian Levine, and learned strategies to improve focus and complete everyday tasks through his Goal Management Training intervention. Since her diagnosis, Joan continues to function well and enjoy life.

Joan Baillie Baycrest Research Toronto

Can you tell us a bit about yourself and your health story?

More than 20 years ago, I had a mini stroke (also known as a Transient Ischemic Attack (TIA), a condition when the brain’s blood flow is temporarily blocked) and made a full recovery. After I left my car running with the keys inside for two hours, I visited my family doctor about memory concerns. My doctor diagnosed me with Mild Cognitive Impairment and while researching the condition, I read that it could lead to dementia.

A year after my diagnosis, I saw an advertisement about a research study taking place at Baycrest. They were looking for people who experienced a mini stroke or TIA and could benefit from cognitive rehabilitation. I was accepted into the study which would help doctors learn more about the brain and the cognitive changes that may occur with a stroke or mini strokes. The hope is that this will help doctors learn how to best treat those with cognitive problems. This research helped me better understand my memory problems and handle changes that are taking place in my brain.

Short-term memory loss always remains a concern and I am very aware of the signs of dementia.

Why does health research matter to you?

The more the doctors know, the more they can do for you. It’s important that doctors have more knowledge because we are an aging population that is living longer.

The brain scans taken at the start of the study showed that I might have experienced many mini strokes which potentially led to my memory loss. With Dr. Brian Levine’s Goal Management Training, I learned many strategies to help with focus and memory and these allow me to live my life more productively.

How does health research contribute to a healthier Ontario?

I believe without health research we would still be contracting polio, dying from diabetes and not living our lives fully due to brain limitations. Every advance in medicine is the result of research. If research can help find a reliable treatment for those suffering from dementia and/or Alzheimer’s, or even help everyone live their lives to the fullest, then it is absolutely necessary for this research to take place.

The knowledge that is gained from health research will contribute to the future care and treatment of patients with similar problems. It will help medical professionals look after their patients in more productive and understanding ways. It will ultimately save the government many dollars as they will better understand what is needed to serve people who live with dementia or similar conditions. We are approaching a crisis stage because hospitals, nursing homes and the general public are struggling to accommodate those who are living with these diseases.

How can patients and families support, improve or empower health research?

The public should understand that it research is necessary if there is going to be any improvement in the care of people in the future. People should make themselves available for research in any area for which they are experiencing issues. It takes some of your time, but the results will benefit so many patients with dementia or Alzheimer’s. When I told people I was involved in a research study, they congratulated me for doing something positive. We can all do that by sharing our experiences and encouraging other people to become involved in research projects.

 

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Add Your Voice

Want to add your voice to the Patients + Research blog series? Email or call Elise Bradt at ebradt@caho-hospitals.com, 416-205-1469, or direct message or tweet at us on Twitter at @CAHOhospitals.

Read more Patients + Research posts and share your own insights on Twitter with the hashtag #onHWS. To learn more about how health research makes Ontario healthier, wealthier and smarter, visit our impact page, and check out our other blog posts and videos.

Health & Community Leaders Talk: Garry Foster

How to spark a discussion about brain research

By Garry Foster, President & CEO, Baycrest Foundation

Garry Foster, President and CEO of Baycrest Foundation

At Baycrest Health Sciences, our focus is brain health and aging. We want people to learn more about what takes place in our labs and how scientific findings are having an impact on the lives of young and old alike, contributing to a healthier, wealthier, smarter Ontario.

The brain is one of the last frontiers of medical science – and we all have a stake in keeping it healthy. Close to 750,000 people in Canada have some form of cognitive impairment. The number is projected to grow in 15 years to 1.4 million as the population ages. In addition to the heartbreak of having someone you love lose their cognitive function, the cost to society is enormous when around-the-clock care and the lost earnings of family caregivers are considered.

To start a very public conversation about the importance of brain health, the Baycrest Foundation and an enthusiastic committee launched The Brain Project presented by Telus. Many generous sponsors are lending their support. After a call for submissions, 100 artists were selected to create brain sculptures that were placed in highly visible locations throughout Toronto where people can stop, admire the artistry and creativity, read the plaques and consider, for a moment or two, what brain health means to them and their loved ones.

In some cases, the artists were themselves motivated to take part because a family member or close friend has had Alzheimer’s disease, stroke or a traumatic brain injury.

The Brain Project is adding beauty and interest to the Toronto streetscape while putting brain health top of mind. Conversations about brain health are taking place as a result – and amongst people for whom the topic may have been previously unconsidered.

The need to make brain health a priority for people at every age is reflected in the research taking place today. Many of our researchers at the Rotman Research Institute – who are worldwide leaders in the study of memory and cognitive neuroscience – conduct cognitive tests and neuroimaging on healthy people as well as people who have experienced brain damage or disease.

Among other things, they are searching for biomarkers that indicate the onset of mild cognitive impairment or Alzheimer’s disease and aiming to identify interventions that will keep brains healthier longer. Already, our scientists have learned that bilingualism, music and social engagement can make a difference to brain health – and they’re testing a range of other interventions as well. One thing they watch for is changes in the hippocampus, which plays a key role in memory.

They are also co-leaders of an international project that is creating The Virtual Brain, an integrated computer model of a fully functioning human brain. It simulates how the brain is functioning under normal circumstances, how it changes with aging and how it responds to damage from trauma or disease. In the future, it will be used to test experimental brain therapies on a computer before they are tested on humans.

Baycrest is dedicated to finding solutions that will restore brainpower sooner to people with neurological challenges and change the trajectory on the prevalence of brain disease.

 

Endeavours like The Brain Project that raise funds and spark discussion play a critical role as our researchers seek breakthroughs in prevention, intervention and early diagnosis that will ease the burden on our healthcare system and create a better and longer future for generations to come.

 

 

Read more Health and Community Leaders Talk posts here, and share your own insights about the value of health research on Twitter with our hashtag, #onHWS.  Or follow and learn more about The Brain Project on Twitter: @baycrest @supportbaycrest @TheBrainProj

To learn more about how health research makes Ontario healthier, wealthier, and smarter, check out our website and our other blog posts and videos.

RESEARCH SPOTLIGHT: Baycrest Health Sciences

Mindfulness is a term that’s used a lot, often in lifestyle magazines and articles about coping with the stresses of modern life. But mindfulness is more than just a buzzword or a fad. Scientific research has established that mindfulness training programs can provide psychological and physical benefits.

Continue reading “RESEARCH SPOTLIGHT: Baycrest Health Sciences”